In December 2022, at 49 years old, I began experiencing symptoms that led to my diagnosis of early onset Parkinson’s disease.
Since then, I’ve often felt frustrated by how hard it is to find clear, easy-to-understand information. It’s not that there’s a lack of information out there, but navigating it can be overwhelming, and it often feels like there’s not enough time for doctors to really explain things in a way that makes sense.
What I also find challenging is the medical community’s cautious approach. Sometimes it feels a bit too focused on limitations, and honestly, that can be discouraging.
That’s why I’ve created this space—to gather and share the most up-to-date, cutting-edge information that could really make a difference.
"Currently, stem cell research for Parkinson’s disease remains with therapies being tested in the brains of monkeys." - My neurologist, 10 April 2025 - (with a hint of pity for my lack of knowledge, and my hope being misplaced.)
Me, after spending 5 minutes on the Internet:
May 08, 2024: "Parkinson’s patient moves freely again after world-first implant of lab-grown cells into his brain" - Euro News Article Here - (Download PDF here if link is broken)
Ask your neurologist and let me know their response, I'll paste it below.